Mynland Potjiekos challenge with a twist

Lian’s immune system is none existing and he has had to have 8 platelet transplants when he was admitted to hospital after his 6-week check-up.

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The Bulletin Newa

This weekend on Saturday 15 September, there is a fundraiser and Potjiekos competition at Mynland featuring Vernon Barnard, from the Voice SA. The funds raised during this event will go towards the treatment of a little boy named Lian with a very rare disease.
Lian Niewoudt was born with a rare syndrome called TAR Syndrome. TAR Syndrome (thrombocytopenia with absent radius) is a rare genetic disorder that is characterised by the absence of the radius bone in the forearm and a dramatically reduced platelet count.
When Lian was born, his parents didn’t know anything about TAR Syndrome but they soon found out that it is more than just a genetic disorder. Lian’s immune system is none existing and he has had to have 8 platelet transplants when he was admitted to hospital after his 6-week check-up.
After this, things took a turn for the worst and Lian was back in hospital. The doctors did all tests possible and finally, the parents received word that Lian was born with a deficiency causing low Immunoglobin. Immunoglobin is the antibody that fights infections. Finally, it explained why Lian was in and out of hospital.
Lian needs to receive a Polygam every month. A Polgam is a medication used to boost the body’s natural defence system (immune system) to lower the risk of infection in persons with a weakened immune system. This medication is made from healthy human blood that has a high level of certain defensive substances (antibodies), which help fight infections. It is also used to increase the blood count (platelets) in persons with a certain blood disorder (idiopathic thrombocytopenia purpura-ITP). Platelets are needed to stop bleeding and form blood clots. (Source: www.webmd.com)
Come and join us for an enjoyable evening while at the same time doing your bit for one of our own. See you there!
Please follow the Bulletin Facebook page and webpage for more on the story. – Ané Prinsloo

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